By Emily Perl Kingsley, 1987. All rights reserved.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
In case you are actually wondering what's going on, we are administering a breathing treatment with an anti-inflammatory drug, NOT using some sort of baby water bong! Not that you could tell that he wasn't stoned out of his mind in the next picture.
TOKE, TOKE, PASS MAN! Messing up the rotation!
And last, but certaintly not least, is my Christmas present for my lovely bride. I think she needs to learn how to defend herself in our dangerous neighborhood. Some would even call it "Tha Hood!" Tell me what you think.
Hello! I know, I know, it's been a while, but with Luke in the hospital with pneumonia, Thanksgiving, Melissa being out of town, there just never seemed to be a good time to do a blog! Well, we saw something funny today that Luke was doing, so we figured now would be a good time to post.
First things first! It turns out that Luke has an addiction. It's serious. It really begins with our addiction. You see, Melissa and I feel as though we need to ensure the local Starbucks stays in business...single handedly! Well, once or twice we have gotten their berry coffee cake. If you haven't tried it, it's great. The real problem is, Luke thinks so too. So now, we can't even go through the drive thru because he KNOWS that's where we get the coffee cake and demands his own! It's an issue we are working through.
The next video we have is one from him using his walker at the hospital. You can tell he was feeling SOOOO much better than he had a few days before that. He really loves to stay mobile!
The last one we have is from tonight. Luke loves Ralphie and he wishes he was stronger so that they could really play together, but since he isn't we get to help them interact. Ralphie loves his blue rubber frisbee, so all he wants is someone to throw it for him! Like I said before, we help them...
In the mean time, Luke is getting much stronger since we've had him on his anti-inflammatory that we got at the hospital. We are controlling his allergies a lot better and all in all he is MUCH more energetic and strong. He is even MORE interactive than he was before we went to the hospital! It's kind of like Donkey from Shrek: "It's not getting him to talk that's the trick...IT'S GETTING HIM TO SHUT UP!"
