Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Sunday, May 12, 2013

Happy Birthday, Claire!!! (Just a little late)

Happy Birthday, Claire!!!!! Well, it's only two months late, but as promised, here is your birthday blog :)  In the first year of your life you have taught us to appreciate the little things in life. Listening to your little laugh is probably one of our favorite sounds in the universe after the tears of pain from your undiagnosed illness. Praise the Lord for the doctors in Arkansas who found the perfect balance of food and medicine so  that you can have the chance to relax and be the sweet little girl that you are. You finally eat like a little piggy to make up for lost time, and in the last 4 weeks, you have gained more than you gained over the last 4 months!! Now that you're stronger, your favorite things to do are to sit in your bumbo and watch the doggies, pretend to beat up Luke, and take long swims in the bathtub.  All of the hours that you've spent in therapy are paying off because you're getting so strong :) Who knows what is in store for the next year!