Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, June 7, 2010

Assessment

And so it begins...

On Friday (6/4), Luke had his initial assessment with Early Steps, the Louisiana early intervention program. The purpose of this program is to ensure that all children with any form of developmental delays receive access to speech, physical, and occupational therapy in order to better prepare them for the public school system. Patrick was lucky enough to get off work early to be home for the big meeting, and we both found it fascinating to watch the Christie, an occupational therapist, test a 7 week old.

Basically, the test involved a series of questions that we had to answer. Then, Christie performed a series of sensory input tests to see how Luke would respond such as ringing a bell, shaking a rattle, shining lights, and so forth. We're not sure exactly what our concerns should be (other than his low muscle tone), so we can't wait for the results of the assessment, which we should receive later this week. For now, we'll just keep having tummy time to work on building up those muscles!

1 comment:

  1. Ahhh..tummy time:) My girls hated it at that age!
    Hoping you get great results back!!!

    ReplyDelete