Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Sunday, September 25, 2011

So many pictures!

We've been busy!  So, first thing's first.  We were in DC two weekends ago and the trip made both Luke and Melissa SOOOOOOOO tired.  So they took a little nipper after waking up.  Being a good (and quiet) daddy that I am, I sneaked and took this picture so I could share it with you:

Shhhhhh!  
Then the other day, our next door neighbor, Emily, brought over a beautiful cake for Melissa's birthday.  She is thinking about starting a cake business.  Turns out she can do some amazing stuff with fondant.  She made this crazy cool Jayhawk cake for Melissa!  She even got the colors spot on!  Unfortunately, the picture doesn't do it justice!  But see, it doesn't matter, because it was delicious!  As you can clearly see:

NOMNOMNOMNOM!



Such a happy little Dude!
And then, of course, since he had some sweets, we figured now would be a good time to start brushing his little teeth!


Get those molars!!

But that wasn't really even the funniest part of the weekend.  So this morning at church, our normal guy singer wasn't there.  An older lady was filling in.  Typically, Luke sings a bit, but kind of keeps it to himself.  Not today!  Nope, he decided to sing with the choir!  On the first song, he really got into it.  Dancing and singing and generally entertaining THE ENTIRE CHURCH.  So, ok, we figured it was just the first song...but nope.  It was the next two songs and then we finally took him out of the church so he could sing his heart out.  Melissa had to actually take him outside because they have speakers in the foray.  He just kept singing.  LOUD.  One of his church grandmas came out to go to the bathroom, and mentioned how good he was singing to Melissa.  After communion, we took him to the car right away and there was a guy getting into his truck.  He just laughed and said that he was singing better than most in the church.  That's when we lost it.  We almost couldn't put Luke into his carseat because were laughing so hard!  He is such a showman!  Just like his parents.  Always up for entertaining!

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