Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"

By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Saturday, June 30, 2012

The many faces of Claire


We finally figured out the mystery behind Claire's sour disposition the past few weeks.....dairy allergy!!! Every time the poor baby girl ate, she would get the worst tummy aches that would just break your heart. It didn't matter if it was breastmilk or the four different formulas we tried - nothing worked. Then, I went back to the doctor in desperation, and she suggested Alimentrum, a formula with pre-digested protein, and TA-DA...we have a brand new baby!!! Claire loves to look around and watch the doggies and Luke play. The ceiling fan especially keeps her entertained when no one else will. She coos and smiles (I swear...neither Patrick nor I are fast enough to get a picture though), and makes other funny faces.


I am happy...oh so happy....

Why won't you hold me??? This is early onset female drama. When this face is made, she isn't actually sad.

I'm getting sleepy.....

Seriously, I am really sad this time. Will someone please stop taking these dang pictures and just hold me?!?!


1 comment:

  1. MelanieJuly 7, 2012 at 5:00 PM

    Salem had a dairy intolerance, too. I breastfed her and gave up dairy myself. Glad you found something that worked with Claire!

    ReplyDelete

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