Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, September 26, 2016

Dance Party Perspective

How often do we think we just don't have our shit together?

We walk into a Monday with a list of 10 to-do items, and instead of knocking them out one at a time, the list suddenly expands to 30 before lunch? Or, we walk into the house after a long day without a single plan for dinner, clutter on the counters, and three screaming banshees wanting dinner? I used to think that was just "Mondays at the Godinez house", but as I visit with my friends and co-workers, I realize that it isn't just me.

This adulthood business is hard. Frankly, sometimes it sucks. Whether it is not being able to figure out our kids, trying to solve complicated work projects that consume our existence, or household responsibilities that overshadow all else, it can be a daunting task to simply seek balance.

Delusional Melissa used to think the answers came with age, more work experience, or more time as a parent, but that is a lie. Just when I get cocky and think I have things figured out, some new, more perplexing issue presents itself. But, at work, that is simply what we are paid to solve, and as parents, that is our inherent task - to navigate the tricky road of raising our kids.

At the end of this Monday, like many others, I have no grand plan or everything accomplished that was on my to-do list this morning. We walked in the door after a busy day of work, school, and therapy appointments, and everyone was about to go into full throttle meltdown mode. So, we turned on some music, Luke yelled, "Let's jam!" and busted some kick ass moves while Claire and Aubrey "danced" in their seats. During that hour, the meltowns faded, the to-do list didn't matter, and we laughed.

We do have our shit together - it just takes a little dance party to realize it sometimes.



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