Not only does the debate over my eyesight leave me with questions, it is also my perception of reality that leaves me questioning if life is as "boring" as I often tell my friends and family when they call to check in.
Last week, I was over in Shreveport for a quick work trip with Squish, my Executive Assistant. I came back home to a fun weekend of date night, Christmas decorating, a Christmas party, running my half marathon, and after my celebratory nachos in the bathtub (because I'm classy like that), Patrick boarded a plane for a week in Vegas.
The kiddos had their 12 therapy appointments, and worked chugged along as usual. It's Thursday, and I'm at over 300 e-mails for the week - steady and standard. But somewhere in there, we're throwing in getting our Bossier house rented (yay), fighting with insurance on some of Claire's coverage (boo), two Christmas parties, and a Billy Joel concert. I don't feel like this is crazy or the least bit hectic because to us, it's just a normal week. There is plenty of time for chatting on the phone, watching Hallmark Christmas movies, and snuggling with the midgets. Any parent and/or working adult can relate to the usual daily grind.
Tonight, Claire's nurse cancelled her shift because she is sick, and the respite care office was trying to find a last-minute sub. The new placement nurse called to find out more about Claire, and I explained that she was pretty low acuity - no g-tube or trach, but non-verbal, limited use of limbs, in a wheelchair, uses diapers, in a cast for scoliosis, etc. She stopped me mid-sentence, and said, "That is NOT low acuity. You have just convinced yourself because she isn't hooked up to machines! She still needs a care-giver for all of her needs."
Oh.
So, maybe I my perceptions are a bit off. Maybe "boring" isn't the right word for us, or "low acuity" isn't the right way to describe Claire. All I know is whatever the heck we want to define this as, it is pretty dang fun....even if I have no depth perception.
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