Our Babies
Luke and Claire
"Welcome to Holland"
By Emily Perl Kingsley, 1987. All rights reserved.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.Monday, September 19, 2011
Some new tricks for Baby Luke!
Here is Luke playing in the bath for you.
And here is his newest trick! Brand new today!
Saturday, September 17, 2011
BUSY past few weeks for a little dude!
Whew! Luke has been a busy little dude! Although the pictures are a bit out of order, Crazy Uncle Mike and his friend, Lisa, came to visit over Labor Day weekend. Our plan was to go hang out on the boat, but of course it rained. No big deal though because we had a great time chilling around the house. Mommy was still pretty tired from Baby CJ, so Crazy Uncle Mike did a good job keeping Luke entertained. Usually they wrestled on the floor, but sometimes, Luke just wanted to snuggle with him on the couch. After he left and Mike called, I would put him on speaker and he would smile and wave to the phone. I think the two of them are going to be dangerous when Luke is older!
The next week it was off to D.C.! My best friend, Jennai, was getting married, and I was matron of honor. It poured and poured when we got to D.C. Poor little Luke had no idea what that stuff falling from the sky was since it has been so long since we've seen it here in Louisiana. Luckily, the weather cleared and we had a beautiful trip. You'll notice the little green froggie in the pictures. Patrick volunteers at a local school, and the frog gets to go on trips with special guests. He got to see all of the monuments in D.C., and apparently, the frog thought it was more exciting than Luke who slept the entire time (no complaining here!).
Jennai's wedding was FABULOUS!!!! It was at a beautiful resort on the water, and the weather was absolutely perfect. Plus, I got to catch up with friends I hadn't seen in a long time, so it was just a great weekend overall.
Then, Patrick had to leave straight from D.C. to head to Arizona to present a paper he wrote. Luke and I headed home to attempt to get into a routine again. Poor little guy couldn't keep his eyes open after his first day back at school and occupational therapy. Thankfully we have some time together here at home as a family before the next trip....
That means more blogs :)!!!!!!
Sunday, August 28, 2011
Sometines, Luke just likes to kick back...
Well, that's not all! After a long day of playing with his rocker and a few of his trucks, Luke decided that he was going to try his hand at playing fetch with Ralphie! Now, he didn't take into account that he can't actually stand yet or really throw any sort of a distance, but there is something he can do...HOLD ON FOR DEAR LIFE!
So all in all, we had a pretty good weekend. Melissa is ready for her first trimester done with. She is super tired, but I leave her be and take a bigger share of work. Although, I have to admit, she is way better with Luke than I am, so the Duder and I are in survival mode until she gets her energy back. Ok, well that's all for tonight. Hope everyone is doing good!
Sunday, August 21, 2011
Busy Busy!
WAIT, WHAT?!?!?!?!
That's right! Melissa is pregnant! Yay! The two kiddos will be just a few weeks shy of two years apart. It seemed like a good round number. We find out what the sex of CJ is in October. CJ stands for Claire or Josh, so until we know, CJ it is.
Being a good big brother in training is hard and it has taken it's toll on Luke. You can see him resting here:
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| The future gymnast! |
But with all of the extra attention from people finding out he is becoming a big brother, Luke has become a little camera shy!
But his biggest thing is that he needs to keep up his strength! In order to do that, he eats so much now! He is even trying out this whole "spoon" thing. We will see how it goes. Plus we are trying on looking like Harry Potter! Bring on Voldemort!
Tuesday, August 16, 2011
Back to Reality
Then, to make his life even more dramatic, it was time to get back to school yesterday! He graduated from Ms. Tina's room, so now he spends his day in the big kid room with Ms. Mary and Ms. Brittany. On his first day he colored a picture of a school, worked on standing, sat very nicely during circle time, and worked on feeding skills in the cafeteria! I don't know who was more traumatized - Mommy or Luke. Our little baby isn't so little anymore :(
More pictures to come soon...
Thursday, August 4, 2011
Too hot to post!
But the best part, is when I go back to the living room, wait for him to start crying again (telling me he is done with his bottle)I realize that he hasn't peeped in about 30 minutes! So I sneak into his room and I see this his little fat leg sticking out of his crib! So funny. Well, Grandma will be here next week, so Luke will be held the whole time! Anyway, we promise we will post again next week!


