Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Tuesday, June 12, 2012

3 Months!!!

Baby girl turned three months today!!! It's hard to believe that twelve weeks ago we were sitting in the hospital waiting on test results to see if anything was actually wrong with Claire. Today, she is a happy, healthy, RAPIDLY growing little girl. In fact, I have been worried if something was wrong because she LOVES to sleep!! The doctor reassured me at her appointment last week that she just needs lots of energy for all that growing she is doing. Plus, here is everything else she has been up to lately....

Finally! Some time to hang out with Daddy! He has been working 7 p.m. to 7 a.m. for the past week, so we really haven't seen him much lately. Got to get in some snuggle time before he leaves Monday for a trip to Washington state.


Luke got jealous that Daddy was getting all the snuggle time, so he wanted his turn too. Notice that Ralphie took full advantage of Patrick's open arms.

The other day we went to playgroup and Claire's friend, Kira, was there. The girls are only 5 weeks apart, and although they don't look like it in this picture, they are good friends. Apparently, it was either poop of food time when I tried to take this picture.

After playgroup the other day, Claire couldn't wait for Luke to come home from school so she could tell him all about her day.

And you can tell Luke was happy to hear she had so much fun.

Then she watched Luke, Ralphie, and Daddy wrestle on the floor for a bit. She decided it was too dangerous to join in the fun....someday soon though....


One of our favorite things to do it to watch big brother at OT every week. Today he was working on arm strength and various motions so he practiced cutting the toy pizza. Then, he and Anita worked on "in" and "out" by putting the pizza in the pan and taking it out to pretend eat it.

Mommy's favorite game is these colored pegs. Luke has to figure out which bolt goes on which peg, and he is getting really good at it! After four correct ones in a row he apparently decided he was done though because you can see him giving the sign for "all done".

No, he is not bleeding. Luke loves ketchup. Blame it on Grandma. She gave us the idea to let him dip food in ketchup one night on her last visit when he wouldn't eat. Fast forward to tonight and the pork tenderloin just wasn't cutting it for Luke. Well, give a pile of ketchup to dip it in, and he devoured every single bite....and then some.


While Mommy gave Luke a bath, Claire and Daddy watched a little tv together. When Luke got out of the tub, he dressed himself; however, he only remembered his hat.

Apparently he didn't think of anything from the neck down....

Who needs clothes or a diaper when you have a straw hat?

Tuesday, June 5, 2012

My Big Kids

Where did my babies go?!?!? Have we ever mentioned how much Luke loves his baby sister? His new favorite activity is to hold her when she is crying. From the look on Claire's face, this doesn't exactly seem to be her favorite activity. In fact, she looks terrified. She'll learn to love it though....someday. For now, I think she prefers spending time sitting on the couch looking around where she is safe from the dogs and her brother.

In other news....Luke WENT PEEPEE AND POOP IN THE POTTY!!!!!!!!!!!!!!!!!!!!!!!! We are not exactly ready to potty train yet, but when my friends asked what Luke does when I sat him on the potty, I had no answer because I had never tried. So, for the past few days we have been sitting on the potty once or twice a day. On Sunday we had our first official peepee, and today we hit the poop jackpot! Maybe he will be ready before we thought?!??






Wednesday, May 30, 2012

There's No Place Like Home

You may have been wondering where the heck we have been the past few weeks, so sorry for the disappearing act. Blame it partially on a broken computer, but more importantly, our trip to Kansas!!! Nothing, and I do mean NOTHING is better than getting to be back at home for more than a few days. Our social calendar was jam-packed!!

First, we spent the weekend in Topeka/Lawrence to celebrate baby brother's graduation from KU. Hard to believe that little Mikey is all grown up. Poor schmuck has to enter the real world now. Guess it isn't really that bad though. Here are Kim, Erin, and I (Sigma Kappa girls) gathered for a reunion. You know you are old when conversation has shifted to house buying, jobs, and babies.

Then it was time to take baby brother out on the town to celebrate graduation. We hit up our old stomping grounds...QUINTON'S (Said in a loud yell for any of you non-KU people)....Louise's Downtown.....The Wheel. Patrick and I may be old, but we closed down the bars and ended the night with pizza just like old times. Thankfully, Grandma Malone kept the kiddos so we could re-live our college days.


The weekend was even more perfect because the old roomies reunited!!!! Blair and Ashley were both in town for another friend's bachelorette party. Even though it was a short visit, it was so good to see each other.

 The next day was graduation. Thankfully, the weather was about as perfect as we were going to get. We started the day at Mike's friends house with some mimosas (Yes, we had to explain to mom and dad what these were). Here are the boys trying to look graduate-like.

Patrick and I were fortunate to live with some of our best friends during college, friends we still have today all of these years later. Mike was equally as lucky to live with some awesome guys the past few years.

Notice that Luke looks scared in this picture. Mike is standing on a slope and had been drinking. Luke is no fool....luckily, this ended well.

Luke couldn't wait to see Crazy Uncle Mike walk down the hill for graduation, a KU tradition. There were lots of people to watch, dogs to pet, and grass to roll around in during the wait.

Grandma Malone and Auntie Theresa took Claire and sat in the shade....
 
Until the grads made it down the hill! Somehow we managed to find them and get this picture. Mike, this one belongs in a frame.

After the graduation festivities dad took the whole family out to lunch at a Mexican restaurant. The food was great, but the wait was long. We intended to go all over campus to get some shots of the three KU grads together, but the babies were getting tired. We did manage to get this one though in front of the main KU sign.

We spent the next day shopping in Lawrence, and it was an absolutely BEAUTIFUL day!!! One thing you don't appreciate about Lawrence when you live there in college are the amazing parks. Luke and Daddy had a great time playing together.

Luke's new favorite thing is to go down slides. It is a little difficult since he can't climb the ladders himself, so either Patrick or I get a good arm workout lifting him up over...and over....and over...

During our visit to Wichita we thought Luke might like a day at the zoo. He loved the petting zoo, but the goats were a little scary at first.

We think Luke liked the statues of the animals just as much as the real thing, which was fine with us because it made getting a good picture much easier.

Even when animals were far away, Luke enjoyed watching them.

We ended the week having Claire's baptism at St. Thomas, the church where we both grew up, got married, and had Luke baptized. We asked Ashley and Anthony, Melissa's college room mate and her husband, two of our best friends to be the godparents. Here are Luke and Stella, their little girl, getting ready together.

At the baptism...


Godparents (Ashley and Anthony Biondi)

And the Godinez family...

 And the Malone family...
 Great-uncle Larry and Great-aunt Mary Malone

Old roomies and kiddos together!

Daddy taking care of his worn out baby girl.


Then it was time to go back to Louisiana. Both kiddos were excellent little travel buddies. Luke loved to act like a goofball making faces and dancing. We watched The Muppet Movie twice on both trips, and he was a happy camper.

Claire used the trip to catch up on her sleep. She was exhausted from meeting all the family for the first time.

Home sweet home.

This is like two blogs in one! Right after we made it back to Louisiana, Jimmy, Katie, and their new little girl, Piper, came to visit for Memorial Day weekend. The weather was beautiful, so we packed the kiddos and headed to the lake.


Piper and Claire are only a few weeks apart, so they spent lots of time on the playmat together. Luke just watched them, wishing they were older to run around and play. Notice the interesting way Luke likes to wear his pajamas. We're just now getting into the "I like to take off my clothes" phase.

This is one of those pictures that Claire is going to hate Patrick and I for later in life. Doesn't she look like a little elf in this outfit?? I got this little outfit before I had Luke, and it just cracks me up. Normally she is decked out in head to toe pink, but the green was a nice change of pace....not to mention the kooky hat :) Embarrassing senior picture?? I think so!
Thanks to everyone who made the time to visit with us in Lawrence and helped celebrate Claire's baptism in Wichita. Until next time...

Monday, May 7, 2012

When Daddy Is Away...

We all like to play!!

 Several friends had posted on facebook how much fun they had at Disney on Ice - Toy Story 3, and we didn't want to miss out on the fun. Despite Patrick being in North Carolina for an air show, the kiddos and I loaded into the car and away we went!



We had to sit in accessible seating since I had the double stroller and no one to help me, but it actually worked out great because we were right on the edge of the balcony. Before we got there I was afraid someone with a giant head would sit in front of Luke and block his views, but no problem!



 Luke even wore his glasses the entire time so he could see. He LOVED the show. He danced and danced and danced some more. In fact, he was cracking up the security guard sitting right behind us. Baby Claire was very good, too. She had her afternoon bottle and slept soundly in her stroller so Luke and I could enjoy the show together.


When Claire is awake Luke plays very nicely with her. Notice that she still has two eyes and no patch! We're still working on the fact that Luke's fingers don't need to point out that she is awake. This might take us some time to learn. :) Claire loves to watch her big brother! Sometimes when she is crying he puts his head on her tummy and it quiets her down.




The weather on Sunday was beautiful, so Luke and I spent the afternoon outside. We played on the swing....in the pool....and with play doh! 
 
 Baby Claire relaxed in the indoor swing because she didn't feel like getting a tan quite yet.

Daddy will be home soon!!!