Our Babies
Luke and Claire
"Welcome to Holland"
By Emily Perl Kingsley, 1987. All rights reserved.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.Sunday, June 15, 2014
Happy Father's Day!!
Friday, June 13, 2014
Vacation: Lessons Learned
Thursday, May 1, 2014
Gain a Little, Lose a Little
But let's be honest: this family doesn't have time for a hospital stay! (We just need to deliver this memo to Claire's metabolism). The kiddos have been busy staying fun with Tori and Katherine. Tuesday was originally going to be an afternoon at the park/splash pad for the big kids, but Claire wasn't about to be left behind. She yelled and yelled and yelled from her crib during nap, so Tori decided just to take all three kiddos (brave soul), and INSTANTLY, Claire stopped crying/howling/yelling.
Luckily, my big project for work is simmering down, so that should leave LOTS more time to enjoy the excellent spring weather. Last weekend was the zoo and Brackenridge Park, a beautiful area with trails, playgrounds, and a train. And lets be honest, it has been at least two weeks since Sea World, so that's probably in our near future. Patrick keeps talking about some projects around the house, but all we hear is blah blah blah......
Here are a few pictures from recently:
Friday, March 7, 2014
20 Pounds!!!!!!!!!
Doctors threatened a feeding tube, but she said, "No way, Jose!!!" In fact, if you remember correctly, she actually got pneumonia when we were supposed to go to Little Rock last March to discuss surgery. It might have only taken prescription formula, eating a diet of solely oil/fat, and choking down medicine with every meal, but she is there! This dang bottle of champagne has been sitting on the counter taunting us for the last 6 months, but we FINALLY get to enjoy our "20 pound champagne".
When we aren't busy making Claire fat, we stay busy with all of our visitors! First, the Mott crew came for a quick weekend visit from Shreveport. The weather was PERFECT, so we had a BBQ and enjoyed visiting while Luke had so much fun playing with the big kids. Then, a few weeks later the Scott crew came! All the kiddos played nicely together, and we had so much fun at Sea World, Rodeo, BBQ at Kelli's, and the Riverwalk. By the end of the weekend, we were EXHAUSTED, but we can't wait for the next visit.
Our next visitors were Larry and Mary. They were down in South Padre visiting friends, so they swung on by to hang out for the weekend. We finally had the chance to try out Tejas Rodeo, a local restaurant that literally has a rodeo out back. In other news, if you need to find Patrick and I on a random Saturday this summer, we'll be at Tejas Rodeo. Then, the weather turned awful on Sunday, so we couldn't enjoy all of the outdoor activities. Luckily, Tori suggested we try out a local museum, and it was a great find! In fact, we had so much fun that I forgot to take any pictures :( Booooooo.....I hate when I do that!!!
If you want to make a reservation at Casa de Godinez you need to hurry!!! We are booking up fast!
Wednesday, February 12, 2014
New School, New Skills
The only thing that Luke loves more than school is Mickey Mouse. Normally, we have time for one episode before school, but there were a few days that getting ready quickly wasn't his cup of tea. After flying out the door to catch the bus while drying up his tears, I told Luke he just needed to get up earlier. He listened.
Monday @ 5:45 am; I'm resting peacefully in bed and suddenly a little forehead is pressed against mine. "Hi momma. Mickey??" Sure...it's only a little early.
Tuesday @ 5:12 am; I'm unconscious to the world when I get smacked in the face with a remote. "Help! Mickey!!!" Um, no. This crossed the line. Nice job waking up earlier like I said, but no.
Rewind to Luke's first IEP meeting last week.....
Luke's teacher: "Luke is such a sweetheart and he is doing great in class. He plays well with his friends, he participates in circle time, and he is showing improvement on some of his skills. But, he does need to work on listening. Sometimes he tends to only focus on what interests him."
Pause for my reaction. None provided.
"Are you concerned that he prefers to focus on his interests?"
"He is three. Isn't that what he should be doing???"
The rest of the meeting proceeded as anticipated. No, he can't count to twenty, doesn't understand prepositions, and can't draw a cross or x without help. I have days like that, too. What he is doing is we're at 95% potty trained (woot woot!!!), he's listening to directions, and he's starting to identify letters on his own!
Grandma Malone sent him a little Valentine's card with money for a treat so we talked about buying something and just he and I went to the store. You'll never guess what he picked out......a Mickey Mouse t-shirt and a bag of tortilla chips!!! See, preferences really are a good thing! He was so cute paying for his purchases. Everyone in line behind him cheered when he paid, and he cheered even louder when the lady took his paper money and gave him back a nickel and a penny. BONUS!!!
Today @ 4:02 am: AAAHHHHH!!!! My warm nest of blankets suddenly flung off the bed and a little midget tugged my arm. "Mickey. Yes. Help!"
Ok, so he focuses a little too well on what he likes. Maybe his teacher was right.....
Wednesday, January 29, 2014
So, do you like Texas??
All of you know that in our lives, the kids' therapists are pretty much extended family. Luke had his OT, Anita, since he was 12-weeks-old, and I wasn't going to let Claire have anyone else! Patricia joined the team as Claire's PT after we came back from Hawaii, and we loved her just as much. When we announced the move, the big joke was, "How many therapists will Melissa fire before she fills their shoes." Well, no firing needed.
And go to Sea World...Luke's personal favorite....
Most importantly, we just get to hang out and not drive to so many out-of-state appointments!
Wednesday, January 8, 2014
Crossing State Lines
had no idea where you were or what you were doing,
and loved every minute?
That's the story of our lives
As we journeyed across state lines
From Shreveport to Texas to start a new chapter.
Notice that we've been absent from the blog
Since I turned the big 3-0
Though our excuse is legit.
Rewind back to September
When the news came
That to San Antonio we were headed
One week later we were there in person
Buying a house
and starting things right!
Then the shutdown happened
And put the move in limbo.
Football season started....
And October came and went.
Before we knew it
Halloween was here and over.....
We tried to kill time
by hanging out at our favorite places.
Starbucks was our favorite where they knew our faces....
We stayed living out of boxes
And couldn't find a thing
for longer than we anticipated....
Our only sense of routine were our appointments.
Claire continued to get stronger,
And brother never missed a workout.
We finally got word that our time had come.
We packed up the boxes, and said goodbye to our friends;
We loaded the cars and moved ourselves (yes, insanity acknowledged).
Our family came to help unpack boxes.
We set up the tree,
And settled in for the new adventure!




