Research

Today was a pretty typical day around the house. Luckily, Patrick is still on leave for the rest of the week, so we are maximizing the opportunity to accomplish as much as we can and still get in some much needed rest and relaxation. We spent the day cleaning, doing yard work, running errands, and working out in between taking care of Luke. When the chores were done and Luke was peacefully sleeping in his swing, I finally had time to sit down and start doing a little more research about Down Syndrome.

After Luke's diagnosis shortly after birth, our immediate reaction was to start requesting material and searching for books; however, the doctors, thankfully, encouraged us to simmer down and just enjoy our new baby. Although both of us had a basic understanding of DS, it is amazing how much information is out there. Several people have commented that they've been doing a bit of research as well in order to better understand what Luke may be facing throughout his life, and we think that is AWESOME! The fact that you are all taking the time to learn about Luke's needs shows what a strong support system he truly has. So, we've decided that occasionally as we learn of great sites/resources, we'll pass them along to all of you in case you want to check them out.

The first site we've chosen is the National Down Syndrome Society (www.ndss.org). It provides a basic overview of DS, educational opportunities, and links to other support organizations around the country. Most importantly, there is a link for "My Great Story" which includes hundreds of stories about the daily joys and struggles of living with DS. So far, this site has answered a lot of the basic questions that have been swimming through our minds the last month, but feel free to let us know any questions that you have because, chances are, we've been asking the same ones!