Our Babies
Luke and Claire
"Welcome to Holland"
By Emily Perl Kingsley, 1987. All rights reserved.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.Tuesday, February 14, 2017
On This Day
2016: I was fat and pregnant with Aubrey at Luke's school program. For the life of me, I can't remember where Patrick was for work, but he wasn't in town.
2015: Doreen St. reunion at John & Julia's wedding. Patrick was deployed.
2014: Must have been a quiet evening at home because there is no FB memory.
2013: We were days away from leaving Patrick in Hawaii. After an incredible four months of top-notch medical care at Tripler, we made the decision to hospitalize her for extensive genetic/metabolic testing and an MRI to make sure nothing had been previously missed.
2012: I was fat and pregnant with Claire. Patrick got my flat tire fixed so I didn't have to take care of it. There are some parts of adulthood that I despise, and taking the car to the shop is one of those.
2011: We were praying to get out of the hospital because Luke was hospitalized with pneumonia.
2010: I was fat and pregnant with Luke, and we were days away from an epic Kansas reunion to celebrate at my shower. I was blissfully unaware of the crazy life adventure that was about to begin.
Typically, I consider my life to be very boring. However, when the events of previous years are there in print to review in one little snapshot, it is apparent that boring might be the wrong adjective to use. Although flowers, dinner out, and other thoughtful surprises are incredibly nice, life just seems to have other plans for us on February 14th each year.
For us, Valentine's Day is about the unconditional support we have offered each other when kids are sick or the military separates us. It has been agreeing to be on hospital/appointment duty when the other spouse is about lose it (typically that is Patrick stepping in for me). It is about finding time somewhere in a 12+ hour workday to visit for 10 minutes because you know the other person just needs to hear your voice. It is about covering extra household responsibilities so the other person can take care of whatever else it is that needs attention.
On February 14, 2018, I'll open up Facebook to check my "On This Day", and this is what it will say:
2017: No, I am NOT pregnant! Thankfully, no one is in the hospital. Unfortunately, the military has us 8161 miles and nine time zones apart, but we did get in that 10 minute call.
It was nothing overly romantic.
Nothing especially earth-shattering was said.
It was exactly what we needed.
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