Our Babies

Our Babies
Luke and Claire

"Welcome to Holland"


By Emily Perl Kingsley, 1987. All rights reserved.


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Thursday, September 30, 2010

Surprise Day Off


 

Surprise! Luke and I got the day off today. It was a typical morning around the house. Ralphie and Sophie jumped out of bed at 5:30 a.m., ready to run up and down the fence with the other neighborhood dogs out doing their business.  Luke woke up shortly after, ready for his morning bottle. While we ate breakfast, we watched House Hunters International to shop for our vacation home. I think we're coming to the conclusion that we're going to build a bad-ass retirement home on some random lake in the U.S. - airplane tickets abroad are just too expensive.  After coming to that conclusion, it was time to get dressed, pack lunch, and play for a bit before the morning commute.  Now, let me tell you - each day the drive to work becomes more and more painful because the weather down here finally got the memo that it is FALL, not SUMMER. Thank goodness it is already Thursday, so we savored the bit of hope that we could enjoy the weather soon.....Luckily, it we got the chance sooner than we thought....

Just as I was pulling into the daycare parking lot, Luke's teacher, Ms. Tiffanie, called to say that school was cancelled! Turns out there was a maintenance issue (sewer problems in the neighborhood), so businesses had to close.  After a moment of panic on what to do with Luke, I decided to take the day off. This couldn't have come at a better time:

So, chances are most of you haven't heard from us for a few weeks. I call my mom and Patrick's mom to assure them that we are still alive and we haven't been eaten by alligators. Patrick has been travelling to Minot, Omaha, and Vegas while I've been behind preparing my company for an audit on our Quality Managment System.  Not to mention, Luke's tummy was upset for a bit last week and I had two projects due for school. So no, we are not dead...just busy :)

After a fabulous day of shopping, cleaning, and NAPPING, Luke and I are ready to face the world again. Even if there isn't a maintenance issue at daycare next month, I think I might just take a mental maintenance day because nothing in the world feels better.  Well, maybe having a husband around to enjoy the day with, but we have 72 days left before that can happen....

Sunday, September 26, 2010



 Sorry it has been so long since I posted!!!! Luke has been keeping me VERY busy this past week. Since it has been a few days, we decided to include a few extra pictures :)

Luke's new favorite activity (well, he's at least not screaming bloody murder when I make him do it) is sitting up in his bumbo. He's content just rolling around the floor, but we need to put his abs to good use since he has to do so many baby sit-ups! He loves to bang his rattle on the tray and watch things fall on the floor.












Who knew sititng up could be so exhausting?!?! Sometimes we have to put MonkMonk on the tray so Luke has something soft to put his head on.  Sometimes MonkMonk sits in the seat with Luke to keep him company.








Luke LOVES having one foot up when he is sitting down. I think he hates his little seat and tray so much because his feet get pinned down. We have to be careful at dinner to keep his toes out of his cereal!








Yep, even when he is asleep in the car he likes to have one foot propped up.  Usually while we drive he holds his feet up by his face and talks to them. I finally bought a little toy that straps to his seat so he has something more entertaining than his feet. Go figure he kicks the toys with his feet rather than hitting it with his hands. Whatever makes him happy!
  After hours and hours trying to coax Luke to roll over, it is now difficult to keep him on his playmat! In fact, this afternoon he rolled off his mat, across the carpet, and over to the tile floor. Some days he is content to just lay in one spot, but today was not one of those days. Ms. Jessie and Ms. Anita (PT and OT) will be thrilled to hear that report!  You can tell from this picture that he likes to pull on the sides of his jungle gym and get into funny positions. I'm convinced it can't be comfortable, but he doesn't seem to mind.








Luke has perfected propping himself up on his arms. He scoots his little legs all over the place, but he hasn't quite mastered balance yet because he usually manages to flip himself onto his back instead of get anywhere. Ralphie and Sophie do a good job of keeping him entertained so he stays on his tummy for a bit. They are in big trouble when he gets truly mobile.
Luke had an exhausting day playing!  After a busy day, a warm bath, and a yummy bottle it is time for bed. Good night!

Sunday, September 19, 2010

Happy Weekend

It was another awesome lazy weekend around the Godinez household.  We hung out and watched football with the neighbors on Saturday. When you live in Louisiana, it is pretty much mandatory to cheer for LSU.  Plus, KU isn't giving us a whole lot to cheer about :)  Apparently, the football was a little too exciting for Ralphie and he zonked out while Luke ate.   Patrick is out of town traveling for school this week, so I had my other friends with traveling husbands over for dinner. Luke loved playing with one of his girlfriends, Grace. It's going to be a busy week...good thing Luke is resting up for it....

Sunday, September 12, 2010

Sooo tired!

What an exhausting weekend! I was super busy playing with my Daddy ALL DAY on Saturday. Mommy went to get her haircut, but when she got there, Daddy surprised her by having a day at the spa set up. While she got pampered, Daddy and I played together and watched KU beat Georgia Tech! Rock Chalk. Then, after Mommy got home we all went to see my friend Landry and her Mom and Dad for a shrimp boil. I didn't eat any shrimp, but I ate TONS of green beans, carrots, and rice cereal (baby style). I must be going though a growth spurt because there isn't enough food in the house to keep me full. Today, Mommy and I cleaned my room from top to bottom. Grandma Malone sure would be proud! After all that hard work, I couldn't wait for my bath and bedtime tonight. My social calendar is pretty free this week, but I do have my first session with my new physical therapist, Jessie, on Friday. Don't worry - I'll give you the full report!

Wednesday, September 8, 2010

Monday, September 6, 2010

Labor Day Weekend

You know those perfect days - perfectly sunny, 80 degrees, and a light breeze? Labor Day Weekend was absolutely, positively perfect! Some of our best friends, Jimmy and Katie, came to visit! They recently moved from Abilene, TX to Little Rock, AR so now they are only 3 hours away. We spent Saturday on the boat, which was fabulous because it has been way too hot all summer for Luke to spend much time out there. Then, Saturday night we went to a party with Melissa's co-workers to watch the LSU game. The rest of the weekend was just spent hanging out and relaxing which was awesome after our chaotic past few months. Tomorrow it's back to the daily grind, but the good news is that there are only 97 days until Patrick graduates!